Amyotrophic Lateral Sclerosis, also known as ALS, also known as Lou Gehrig’s disease, is typically associated with men. Unfortunately, women are more and more becoming afflicted with this disease that robs people of the use of their bodies while their minds are still active and alert. A dear friend and mentor, Connie Zimet, passed away a couple years ago from this awful disease. Connie was known in the entertainment business for her voice acting, singing, and for many, her coaching. It was heartbreaking for all who loved Connie to witness this disease take away her voice that was her hallmark and signature. Connie is missed daily, and is thought of every time one of her students gets in front of a microphone. We keep her legacy going because she no longer can. Thank you Connie for having an impact on me and so many others.
Another woman suffering from ALS is Susan Spencer-Wendel. I don’t know Susan, and she may not have had the celebrity-like life that Connie did, but Susan is making the effort to keep her legacy going as well. Having lost a tremendous amount of muscle control, Susan used her thumb to write a book chronicling the last memories she is capable of making with her family and friends. In her book, she talks about taking her 14-year-old daughter shopping for a wedding dress because she won’t be around when her daughter actually marries. Susan takes her son to see the last Space Shuttle launch so he will have a truly special, historical, and lasting memory with his mom. As painful as the story may be, Susan Spencer-Wendel, makes the choice to live out her life “joyously,” and that makes her a WARRIOR in our book. If you want to read her book, you can find it here, www.susanspencerwendel.com. Thank you Susan for sharing your journey with us and reminding us to live every moment with joy. Totem Tamers wishes you a peaceful journey and long-lasting legacy.